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Thursday, July 23, 2009

Busy morning....quiet afternoon...

Today was another day into our new routine. He got up early and they took him to the gym for his physical therapy. He did his physical, occupational and speech therapies all from his fancy chair this morning. This is part of his new schedule. He did well today with physical but was not much interested in speech today. We had another new adventure...the shower! He had his first actual shower today and really seemed to like it. By the time therapy and the shower were done it was already early afternoon and the second he made it back to bed he started snoring. He slept so deeply and restfully. We had quite a few visitors today R came and got to experience some of his physical therapy, but mostly he kept me company. After he left K came and brought us a new CD. She had burned some new songs for him, the Rocky theme song and Eye of the Tiger to name a few. He had a definite response the first time he heard Eye of the Tiger, there is something about that song that just takes you back. I also video taped the girls today playing in the pool. I told them that I was going to take it to Daddy to show him, so they both put on the show and spoke directly to him, calling out "Daddy, Daddy, look at me!" as they were showing off the results of their ongoing swimming lessons. I got 15 minute of them speaking directly to him, and when I showed it to him, there was an emotional response. It is good to see those things. He slept or was quiet for the rest of the afternoon. The routine continues tomorrow and we are always excited to see what it will bring. K dropped her girls off to play with H&E when she came to the hospital. When I got back, they were so excited and talked all about their fun day in the pool with the big girls. They have been turning into quite the little water babies, just as he wanted. Despite it all they have had a good summer. This is largely due to the people around them who think up activities for them, include them in fun, and just spend time with them. It has made the transition so much more bearable. They do not fear, they go to sleep easily, they dance, they play, they eat ice cream and Popsicles, they have had fun being kids. Exactly what he wants them to do. This much I know is true......................................................(thank you K)

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